Thursday, November 3, 2011

Kaylee's eyes

When we took Kaylee to the Eye Doctor, we realized how bad her eyes really were. We knew that she couldn't see well, we just weren't sure how bad they were.

She has several things wrong with her eyes, and from what I have read about them, they are all connected. She has nystagmus, albinism, and severe astigmatism. The nystagmus causes her eyes to vibrate back and forth. She tips her head back to look at something, at first I thought it was muscle control. The Eye Doctor said it has to do with the nystagmus and it is a good thing, because she has found her null point. My understanding is that this is where her eyes stay still so she can see. The albinism, we believe is just in her eyes, though we haven't tested to know for sure. Ocular albinism is when there isn't enough pigment in the eyes.

The Eye Doctor prescribed glasses to see if they will help.

So, we set out to find the most attractive and stylish glasses least destructible glasses. And here they are (see the baby on the floor in the background? It is a real baby :), I put him down for a minute to do something and he slept for an hour!)

I'm not sure if she really can see better out of them though. From what I've been reading, glasses may not help her condition. The Doctor wasn't entirely sure, either. So, we will try them for awhile.

In this picture, do you see how Kaylee is tilting her head back? She is looking at the cookie. (Justus looks like he might jump across the table to get to the cookie). This is how Kaylee usually tips her head back.

But, with the glasses, she tips her head even further. It looks as though she is trying to look under them, but I don't think so. The strangest thing, she also opens her mouth very wide while wearing them.

In this one, to get her to not tilt her head down, I snapped my fingers near the ground. See, she isn't looking at the camera.

Oh, there you are.

Ok, so I wanted to see if she still did it with the glasses off. No, she doesn't. This is probably one of the cutest pictures I have of her. Look at her poor face, she has been falling so much lately. That is another thing that is worrying me.


  1. Oh my gosh, this made me laugh so hard! The picture of Seth on the floor and Justus's face looking at that cookie! I about Died!! hahahahaha Kaylee looks cute in her glasses. I hope they work for her. :)

  2. So strange the way she looks under them. Keep us posted on whether or not they help. Love you!

  3. she is precious! that was a really cute pic!


  4. Dusty has glasses too - but won't keep them on! Sonya's glasses are being ordered! Hopefully Dusty will wear them if Sonya does! Miss you! She looks GREAT!